MS resources wanted
Nov. 25th, 2018 09:19 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
boxofdelightsThe MRI showed lesions in the ocular region of Nixie's brain. The doctor at that hospital said he thinks it's MS. I don't know whether they have to run more tests to be sure? I don't know much at this point.
They transferred her to another hospital with a neurologist on staff. She'll stay there for three days of steroid treatment. We're trying to decide whether Mungo or I or both of us should go be with her. I'm better at emotional support, but he's pretty good, and also not afraid of driving an unfamiliar car in an unfamiliar city. Also he's a nurse, so better at getting information from medical people.
Tell me what you know about MS. Good resources about living with chronic illness in general also appreciated.
They transferred her to another hospital with a neurologist on staff. She'll stay there for three days of steroid treatment. We're trying to decide whether Mungo or I or both of us should go be with her. I'm better at emotional support, but he's pretty good, and also not afraid of driving an unfamiliar car in an unfamiliar city. Also he's a nurse, so better at getting information from medical people.
Tell me what you know about MS. Good resources about living with chronic illness in general also appreciated.
no subject
Date: 2018-11-27 05:20 am (UTC)I had no idea Mungo was a nurse, by the way.
MS patients get bombarded with the most awful barrage of expensive bogus treatments.
As others have said, for a lot of people a diagnosis can be followed by years or a lifetime of no symptoms. I very, very much hope that is the case for her.
I know multiple local people with MS who may be willing to talk to her about it.