MS resources wanted

[boxofdelights]

The MRI showed lesions in the ocular region of Nixie's brain. The doctor at that hospital said he thinks it's MS. I don't know whether they have to run more tests to be sure? I don't know much at this point.

They transferred her to another hospital with a neurologist on staff. She'll stay there for three days of steroid treatment. We're trying to decide whether Mungo or I or both of us should go be with her. I'm better at emotional support, but he's pretty good, and also not afraid of driving an unfamiliar car in an unfamiliar city. Also he's a nurse, so better at getting information from medical people.

Tell me what you know about MS. Good resources about living with chronic illness in general also appreciated.

Comments

[mishalak]

My cousin once removed has MS. She lives with it, but it does tend to dominate her life rather like if someone ends up with gradually increasing visual problems. Because it is an incredibly physical world and is not set up to accommodate people seamlessly as they have problems that periodically shut down some part of their physical body. That said she has had a full life with all the ups and downs, marriage, children, etc.

Not all problems can be solved, but all problems can be managed.